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Showing posts with the label Long QT

Spend Your Life Doing Strange Things with Weird People

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 Spend Your Life Doing Strange Things with Weird People The Purpose of Your Life is to Live It. This is something that is not needed to be said to this group of people, taken at the SADS conference Sudden Arhythmia Death Syndrome we all live our lifes either having died or having the threat hang over our children and ourselves. Miss Fish Templates Simply Stacked Template Bundle Template #9 #missfishtemplates Oohlala Scraps Live Life Kit

The Black Hole

My memory has improved substantially over time, which is really scary as it's what I consider terrible today. I don't have a diagnosis for it.  If it's from the SCAs, if it's from the hypothermia treatment, if it's an actual brain injury.   After my SCAs I didn't know what certain things were.  A pizza that had been in my life for twenty years, I had no idea what it was. I didn't know how to eat it, if I liked it, or even if I wanted to eat it.  Kids laughed at me.  I couldn't remember the simple letters ICD.  I called it "that thing". Spelling, grammar, punctuation, math all took a severe hit. I couldn't read a book. I lost everything from fall of 2009 till my SCAs in 2012. I can get senses of dejuvue at times but not the memorie.  Saying or typing a certain word escapes me.  I'll change an entire paragraph to avoid word usage. I can do things, or participate in a conversation, and a day, a week, a month later I have no idea it h...