Posts

Showing posts from August, 2019

Fall 2018

Image

Meet me in the moonlight

Image
Alexis attended Camp Sundown in July 2019 in Albany New York, as many activities as possible were held after the sun went down for all the kids and adults that have a medical condition that prevents sun exposure. She loved the camp. The glow in the dark balls were lots of fun.

Supreme Court of the United States of America

Image
Supreme  Court of the United States of America Alexis collects courts like some people collect sign posts

Carrie Underwood in concert at Rogers Place May 2019

Image
Carrie Underwood in concert at Rogers Place May 2019

Solar Urticaria Awareness

Image
My daughter would always burn in an instant outdoors, no matter how much sunscreen or clothing she wore. We always put it down to her fair skin, Swedish ancestry, and tried to do better. At age 12 the burns progressed to hives, and feeling ill, and more allergy symptoms. We were shuttled from doctor to doctor, from specialist to specialist. Four years later she was diagnosed with Solar Urticaria. Friends will say, "yeah I have that too, but do you really?" Its more than turning red, its more than the odd hive. Its a life threatening allergy to all forms of UV Light. Its being in pain all the time you are exposed. Its about sleeping for 24 hours after exposure due to the histamines your body worked so hard to produce. Its about having hives, layered on top of each other, on top of each other, until you look like a mottled set of purple grapes. The pain, the lack of treatments, the doubt she faces every day. Awareness is a must. A group she is in created this pin and distribute

My book of me always has a few pages randomly thrown into it:

Image
My book of me always has a few pages randomly thrown into it:

A few geocaches from a series that really tested my capabilities

Image
A few geocaches from a series that really tested my capabilities

Annie from Scandal

Image
Olivia Pope's Dad worked at the Smithsonian and named his dinosaur Annie. Alexis really wanted to go to the Smithsonian and find Annie.

Dream Vacation Summer Memories

Image
These were Alexis pick of special special moments from her vacation this summer to the USA and Ontario

Relearning to read with the kindle app

Image
Relearning to read with the kindle app. It helped me in so many ways.

Volunteer work on Canada Day

Image
Volunteer work on Canada Day working in the kids tent at Fort York through Experiences Canada