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Showing posts from December, 2013

Christmas 2013

The stockings were hung by the chimney with care..........doesn't that just draw the prettiest picture?  I wonder how many places are actually that picture perfect then I get on pinterest and see the perfect pictures and shake my head. Reality is far from picture perfect in my life.  I often think that Murpheys Law (if something can go wrong it will) actually was written about me.  I believe it even more these dye. But I still find humor and beauty in the small things.  I found it laugh out loudable that my sister told mei was hosting Christmas next year whether I died again or not.  The nettinei die it better be permanent so i guess I'm hosting from the other side. Driving home in the dark and slowing down to see the beautifully lit yard was an experience. Truly this Christmas was made possible for us by local charities and the friendship and generosity f people from around the world.      It's a very humbling situation to find yourself in. The saying goes that the giv

Looking back and forward

I was in no place to know what my rights were when the decision came to getting an ICD.  Having one or not having one was never presented as an option, not as an either or, it was presented as you get this or you die. I had no desire to die permanently.  Knowing then what I know now, I may have chosen differently.   Would I have been so blasé about getting one the first time or getting the second and third one? Not on my life. Blasé would not have existed. Informed, participatory care would have been the order of the day. My case has been a disaster: actually one disaster after another throughout this whole thing.  People tell me all the time I'm negative, I'm actually not, I'm just willing to talk about the complications that can happen, because most people don't survive the complications. Knowledge is power. I want everyone to make informed decisions, to know as many facts as possible, not to make decisions based on half disclosed information. Not to base decisions